As I write this, I am sitting in the car outside the dentist’s office.  Michael and Elizabeth are both scheduled for their routine visits. Their first one since the pandemic began.

I apparently scheduled them for the same time, 10:00, good for me, as that means they both go in at the same time, get done at the same time and I don’t have to sit in the car as long (sorry I know it is not all about me, but it is a good thing!).

However, Michael got called in first and that left Elizabeth waiting for “someone to get me”, and we are going on 10 minutes now.  She is all masked up and waiting.

Anxiety in increasing as the time she is waiting, she says she isn’t but her fidgeting is telling me another story.  So is her talking about the next things today, like making sure she can talk about what she can hold onto….

This type of thing is the reality of the struggle that our children faced prior to Covid but face even more now.  We prepare them but the reality is that they will face changes in plans, waiting times that are more than we thought or situations that fall short of what we told them to expect.

The preparation we did was great, she has a mask on, has sanitizer and knows that she has to social distance ( that means in her words “keep your distance”). I even called early in the morning to confirm that they would go in together.

But things happen and life steps in.

This is a small bump in the plan, not a huge crisis, but it illustrates my point that the increased anxiety our special needs children feel upon navigating this new normal is valid…Really valid!

I put on some soundscape music for her and we talked about how she was feeling.  We did some deep breathing and positive affirmations that she likes.  I have to think to offer that having some of these things at the ready might be a good idea along with perhaps a calming sensory item ( see our store for ideas)

 She told me that it is tough waiting and I don’t know what to do when I get in there.

Again, I really can’t tell her what to expect as I only know what I was told (my appointment isn’t until September, so I have no first-hand experience to rely on).  This helps but only a little.  I have learned getting to the event or experience is to lessening anxiety.  Sometimes it’s the only way! But it once again proves my point that each new experience in the new normal most likely will elicit similar feelings of anxiety and uncertainty. 

So best to recognize it and prepare as best as you can.

Thankfully, the dental assistant arrived at our car window to take her in…this is their protocol.

She exited the car, had to fix her mask as it was below her nose, and in she went.

Once experience down….

I hope you are all having a peaceful week and staying safe.

I am wearing a mask for my mom and those who could get really ill.

Michele Gianetti author of:

I Believe in You: A Mother and Daughter’s Special Journey

Emily’s Sister

Elizabeth Believes in Herself: The Special Journey Continues

Is it really a slump? I am not sure. What I do know for sure is that we are doing the same things most days. Meaning we accomplish a nice amount of things on most days.

We walk each day and have upped the distance to 3 miles.

We do school work in some form.

We bake, talk, play music, do zoom calls and virtual visits.

So why does it feel like a slight slump?

Did I dare to look at the future in my minds eye and sort of mentally gasp at the sight ahead that is a combination of time and question marks? I think I started off with a great deal of reserve and gotta say, did well with everything.

Including the fact that we as a family all caught the Corona virus.

So we made our way through the quarantine, healing from the virus and truthfully making sure that Elizabeth stayed organized and on track.I hate to say it that way but with her special needs of Sensory Processing Disorder ( SPD) and global dyspraxia; Helping to keep her neurological system organized and in a state of homeostasis, makes the day calmer and more productive for her. And allows for others to relax and enjoy the time with her.

We know her signs of a overload and anxiety and are quick to identify them so as to help her help herself. Such as taking a break, some sensory items( please see our store for items), or talking to us or her therapist. We have learned what things help her as she had a sensory diet for years.

You know the saying Happy wife, happy life. Well for us we insert Elizabeth for the word wife. We joke about it but we do know that her stress and anxiety can be hard for us all, and of course especially for her.

So let’s say that with the routine fairly set, we have done pretty well and then it hit me…we will be continuing this for a long while more. I am concerned that I will be doing enough for her, enough “stirring of each pot” for the things or skills she would have typically gotten from those on “Team Elizabeth”

I have also learned that many of those on her team, are not ready to work with her face to face due to their fear of the virus and I respect that so very much, but for me, that becomes one more pot to stir, one more thing to make sure we do.

So is it a slump? or is it a bit of fatigue? I say maybe a combination of the two.

I know I am proud of how she did during it and that she remained upbeat, organized and happy for a large portion of the time and I know that we will continue to be a team I just needed to process my feelings this week. Maybe it was the increasing number of cases, maybe it was the calendar moving toward July or maybe it was just some feelings.

I will regroup, as will others who feel this same fatigue or slump or whatever because we always do for our special needs children.

I wish everyone a peaceful week.

Be safe and wear a mask! I wear a mask for my mom and other who could get really ill.

Michele Gianetti author of:

I Believe in You: A Mother and Daughter’s Special Journey

Emily’s Sister

Elizabeth Believes In Herself: The Special Journey Continues

%d bloggers like this: