Archives for the month of: October, 2015

As Down Syndrome Awareness Month draws to a close, we wanted to highlight a few people born with Down Syndrome who are changing the conversation about how we think about this genetic condition. Extraordinary people like professional model Madeline Stuart and MMA fighter Garrett Holeve urge everyone to revisit how we define beauty and strength.

Madeline Stuart - Special Needs Essentials

Madeline Stuart: The New Beautiful Face in Fashion

Globally-recognized model Madeline Stuart turned heads and made headlines when she strutted down the runway during New York Fashion Week last month. Hosted by fashion brand FTL Moda, Stuart wore fitted, feminine haute couture and finished the show to a standing ovation. Earlier this year, actor Jamie Brewer from the hit tv series American Horror Story became the first person with Down Syndrome to model in a fashion show.

“This is about creating inclusions, stopping discrimination and breaking down those walls of confinement,” said Stuart via Facebook. “Modeling is just the vehicle that is letting us do it. We want everyone to be loved. After all, that is all that truly matters.”

Madeline has documented her NYFW journey via social media. Since her debut as a model a year ago, Madeline has amassed nearly 80,000 Instagram followers, more than 3,300 Twitter fans and 471,911 Facebook followers. In a series of candid photos and tweets, the inspirational model shared the moments that helped shape the future of the fashion industry.

Damian Graybelle, the president of EverMaya, released this statement when the lifestyle brand announced that Madeline had been named as their new spokesmodel. “Let me be clear here – Madeline Stuart is not a ‘beautiful young woman with Down Syndrome.’ Rather, she is beautiful – full stop.”

Garrett Holeve - Special Needs Essentials

Garrett Holeve: Fierce Fighter For Equality

Professional MMA fighter Garrett Holeve is breaking down preconceived notions of people with Down Syndrome in a literal way. Holeve, known professionally as G Money, is fierce both in and out of the hexagonal cage. He has trained as a MMA fighter for five years and wants a chance to compete. As it turns out, Holeve’s biggest battle hasn’t been in the ring. It’s with the people who want to prevent him from participating in professionally-sanctioned fights.

Last August, minutes before the opening bell, the boxing commission ordered the cancellation of a bout between Holeve and David Steffan, a Special Olympian with cerebral palsy. Armed with the full support of National Down Syndrome Society, Holeve has partitioned the Florida authorities for his right to compete in MMA.

“Garret has the same rights as the rest of us. It doesn’t matter that he has Down Syndrome. If he’s a fighter, then he’s a fighter,” said Mark Priceman from the National Down Syndrome Society.

While he waits for the verdict, Holeve is connecting to his beloved sport in other ways. Recently, he founded Garrett’s Fight Foundation which advocates for competitive opportunities for adaptive athletes.

Garrett’s Fight Foundation strives to turn disabilities into abilities by making the necessary modifications to training and finding ways to conquer one’s limitations. The foundation promotes the integration of individuals with various disabilities into athletics by providing individualized coaching and adaptive training. 

October is Down Syndrome Awareness Month, a chance to spread awareness. During the month of October, we celebrate people with Down syndrome and make people aware of their tremendous abilities and accomplishments.

Want to share an inspirational story with us? Drop by our Facebook page and say hello!

Alison is a mid-thirties mum to two children, Little Man and Wee Girl. Wee Girl is pre-verbal and has autism, while Little Man is the sort of happy chatty little guy who gets into everything and sings at the top of his lungs — until the moment he makes eye contact with a stranger and he goes silent. Alison is cynical, sweary, and a bit disorganised, and she blogs about parenting, ASD, food and just about anything else she can think of. Read the original post here.

Baking Tips - Special Needs Essentials

“We’re making lemon and lime muffins in this post, the recipe for which can be found here.

Wee Girl is fascinated by cooking. When I make scrambled eggs for lunch she insists on pushing the stool up to the side so that she can help stir. Same thing with making coffee, wiping down tables — all these things that she sees us doing every day and wants to be able to do herself.

This independence is fantastic and something which we want to encourage. One thing I try to do is bake with her. I don’t do it as often as I should, but we’re starting to get back into it now, and soon I’m going to be trying to cook more savoury recipes with her helping, such as pizza.

Because believe it or not there’s only so much cake a person can eat.

Cooking with your child can be brilliant for building speech and language because not only is it teaching them vital life skills (everyone needs to be able to bake, right?), it also involves following simple instructions. (“Can you tip this bowl of flour in there, please? Thank you!”) Cake can be an astonishingly effective motivator.

Part of what stops me from baking with Wee Girl is how complicated a lot of recipes are. Particularly cupcakes. Having to cream butter and sugar or beat the mixture isn’t doable because she doesn’t like the noise the mixer makes, and there’s no way I’m going to beat the mixture by hand.

Here are a some tips based on my experiences and what has so far worked for us.

Baking tips - Special Needs Essentials1.) Make muffins, not cupcakes. Muffins are perfect for cooking with kids. No beating needed; all you do is dump the wet ingredients into the dry, give them a cursory mix and start spooning them into the cases. There’s also no need to worry about the additional step of icing; when they’re done, they’re done.

2.) Don’t cook in the kitchen. Use a low table which helps your child to engage. I usually do this in the living room, which means carting all the ingredients and equipment from room to room. Yes, this is a pain in the backside, but a low table means that you can sit opposite your child, making it easier to communicate than it would be if you were both standing at a kitchen counter.

Baking tips - Special Needs Essentials3. ) Pick a recipe that’s easy, without too many ingredients, but not too simplistic. This means thinking about your child’s attention span and how long they will engage for before they lose interest. Bear in mind that the fewer ingredients you use, the less you will have to cart from the kitchen to the living room. Having to nip back to get a few things means more likelihood of your child tipping half the bag of flour into the bowl while you’re away. Or smashing all the eggs on the floor.

4.) Read the recipe through and do any necessary prep. Try and do as much as you can at the table, bearing in mind your child’s attention span. Weighing and measuring, etc, is a fairly vital part of the recipe, so it would be a shame to do this hidden away in the kitchen.

Baking tips - Special Needs Essentials5.) Be prepared for your culinary creations to be… well, not necessarily something you’d like to eat. Think of it as a sensory activity for your child, rather than  a culinary one. There will be double-dipping (which I couldn’t give a monkeys about, but I know not everyone feels the same way). There will he hands stuck into flour. There is a high likelihood of snot. Yes, in theory you’ve both washed your hands beforehand. But that doesn’t account for nosepicking afterwards, does it? So it’s fine if the thought of actually biting into those lovingly made muffins turns your stomach. They are for the kids, after all. And they make a wonderful treat for unwitting husbands: just don’t tell them about the snot.

6.) Make cleaning up part of the activity. Yes, there will be mess. Yes, it’s a pain in the backside. If you’re lucky you might get away with handing your child a cloth and leaving them to wipe the table, but we all know the soul-sapping bit is putting the ingredients away.

Baking tips - Special Needs Essentials7.) Be patient. Try again. Your child might not be all that interested at first. Maybe they’ll lose interest half way through or refuse to do anything to help. That’s okay. Try again. Try a few times. One thing I have learned with my own daughter is that just because she doesn’t look like she’s paying attention, it doesn’t mean that she’s not paying attention. And hey, even if it doesn’t work, who cares?

You have cake!

Enjoy.”

Special Needs Essentials extra tip: if you child has trouble grasping utensils, try this weighted soup spoon.

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