Archives for the month of: September, 2021

Ok, so when COVID shut down the world in 2020, we found Elizabeth at home again.

Home:

From her college program

From her internships

From her job training

Home

But we took the lockdown and made a schedule to keep her busy, productive and occupied.( insert smile face here)

Time passed and we began to change things for her again. Sort of revamping the schedule and changing the goals to HER goals. Her special needs challenge any new skills. Her global Dyspraxia and Sensory Processing Disorder (SPD) make each day hard work. But,

We worked on many skills of life because we had the time to do it.

We worked on her art skills for the same reason.

I have to say that COVID was the chance to just BE with Elizabeth. Something that I know doesn’t happen alot as there is always something we need to do, should be doing, should be teaching, should be reinforcing, someplace we have to be, some therapist we need to see and on and on.

But I got the chance to just BE

And it was a gift.

We are now, what?, 18 months into this thing and I thought about that today as she and I were walking at 7:45 this morning. We must have walked more miles together in this time frame than in the entirety of her life.

And that too, has been a gift.

I am grateful for the person she is and the gentle ways she possesses even thought at times, she makes me feel more things than peace, like when she pretends not to know where something is just to let me know she didn’t want to get it for me in the first place.

Or when she says “SORRY” in a very sarcastic manner to let me know that she means anything besides the feeling of sorry.

Or when she absentmindedly answers “Yes, I understand!” over and over again as I talk letting me know she is totally not listening to me at all.

But the thing in all this is that we did work on skills, and kept them up as well as added new ones. And the world opened up for Elizabeth again.

And now her world is opening up more because she got hired officially by her second part time job! She has been doing her internship working with Gymsters, a physical fitness program for preschool and school aged children both special education and typical.

She loves it and now is officially working for them!

Proud?

You bet and so is she.

This week she started working with her first official day being Tuesday.

So she is working 4 days a week now. 2 days here and 2 at her catering job.

And I am happy to see her resume her life, in a new and improved way, that she left back in March of 2020.

Just wanted to share a bit of happy in a world that has so much going on.

I wish everyone a peaceful week and please wear a mask.

Michele Gianetti author of “Elizabeth Believes In Herself”

So I have made a promise to myself and it is called You will watch the first 20 minutes of a popular national morning show every day!

Not always is there time or am I in front of the TV so I am even taping it to watch later in the morning if I have to.

But I am going to keep this promise.

I made this promise to myself because I have sometimes been the person who goes around saying What happened? When did this happen?

And I hope the person I am talking to will have the required time and patience to fill me in.

So as I am keeping this promise I am now so very inundated with information about the world. The stresses, challenges and changes each day brings.

The one thing that stands out for me in all this is that the world really does swirl around us. And for most of us, OUR world swirls around as well. So we have these 2 swirling things that affect each other and cause effects to each other.

The topic of school and masks and vaccines is making the return to school probably bigger and more anxiety producing than we ever thought possible.

This is a fact for everyone.

Now add the variable when you have a child with special needs.

Now feel the stress grow.

I can feel stress for Elizabeth and how this all affects her world and she is no longer in school. For those who don’t already know, Elizabeth is my daughter with special needs. She has Dyspraxia and Sensory Processing Disorder ( SPD). Life for her includes managing these disorders all day, everyday. Will her work continue? What we she do if things shut down again? How will she feel? And on and on….

But for those in school, the stress is so different and compounded by the fact that pandemic or not, the IEP meeting needs to happen or the evaluation still must be scheduled. Let alone, the private therapies the need scheduled.

The needs of your special needs child need addressed and items for them put in order, pandemic or not.

I know that when I used to have to hunt for papers or records or remember the last conversation I had with the school, I can feel a wash of slight panic until I find them.

And the papers and forms just keep coming.

So something maybe to consider doing this year is to fine tune your record keeping regime for the sake of peace of mind.

Maybe instead of the pile labeled 2021-2022 school year ( Yes, I did that one year early on and it wasn’t pretty by only the half year mark) It may be the right time to make folders for the following:

School papers (general)

Therapy reports/communications

IEP Records

Communications with teacher

Communications with other school professionals

Medical reports

And more.

Then put them all into a bin to use as a make shift filing cabinet.

Then you will know what to do right away with a paper that arrives home. And sometimes in a world of crazy organizing a small piece of it can do wonders for keeping the clutter down.

Knowing that last year’s school year left holes in records or communications can make doing this organization this year even more important. This way when the school calls and asks a question or needs a letter, you will know right where to find it.

And that can bring you some peace.

And any peace of mind currently is more than welcome.

I wish everyone a peaceful week and please wear a mask. Stay Safe!

Michele Gianetti author of “I Believe In You”

%d bloggers like this: