Archives for category: Uncategorized

The answer to that question is a big fat NO from me.

I know that this is the truth because I JUST this week took a moment to look up the calendar for the new school year for my son, Michael and while I KNEW it was August, for some reason it took me by complete surprise and awe to see that the school year for him begins on the 25th of August.

As in about 3 weeks.

As in where the holy heck did summer go and was I just enjoying the summer and helping Elizabeth so much that the days flew by? I guess I would say YES!

So after I got my head out of the sand and let’s be honest that is where apparently it has been residing, Michael and I talked and made a bit of a plan for him about clothes and supplies.

Now truth be told, Michael is my only child who is affected by the arrival of Fall and the whole back to school thing. But the feeling of the start of a school year brings out in me the feelings that we should be looking at a new start.

New goals.

New plans.

Whether in a new school year or not.

So I have a thought that it is time to talk to Elizabeth about new goals, plans etc. ( another blog topic for another day) For those who don’t know, Elizabeth is my daughter with special needs. She has global dyspraxia and SPD (Sensory Processing Disorder) Both of these disorders affect each and everyday of her life and require those who are working with her to understand HOW she works and that requires helping them understand her disorders.

So what comes to mind for those who have a child with special needs is the need to fully represent your child to those who will be working with them this new year.

To help the new educators know:

WHO YOUR CHILD IS.

WHAT THEY CAN DO

WHAT SUPPORTS THEY NEED IN PLACE TO SUCCEED

We have all seen what COVID has done to the educational system. With remote learning and in person learning and combinations of the two. So with the thought that we don’t really know what the year will hold, it is important to start the year off as organized as is possible. And in my opinion, that means communicating well and fully with those at the school system.

Many blogs ago, I had mentioned the importance of taking notes of all the successes and struggles of summer. Of all the things your child did, the new things they attempted, the new words they said. How they handled a new experience and more. Pretty much all of the stuff of their summer. Because it is this information, these notes that can help you help the school understand just where your child is as the year begins.

As we look at the end of summer, now is a good time to decide how best to communicate all the above for your child. I always chose a letter and make sure all the people who were working with Elizabeth would receive one. The form it takes is up to you but in my opinion, the information is critical to getting everyone on the same page right away.

With so much uncertainty, it can be nice to know you have laid the best ground work as you can for your child with special needs.

I wish everyone a peaceful week and I guess it is time to once again say …Please wear a mask!

Michele Gianetti author of Elizabeth Believes in Herself

So I decided to make a change in the way I squeeze the toothpaste tube.

For several reasons.

One, being that by the time the tube is halfway done, it looks mangled and is very difficult to get the toothpaste from the bottom half of the tube through the crushed middle of the tube onto my brush. Two, in addition to the above. I also seem to forget to put the lid on the toothpaste. So I thought I would remember that better if I did the first thing

Yes, it is true, I am a one of those people.

So with great resolve I opened a new tube. Put it on the bathroom shelf and the proceeded with my day. I then went to brush my teeth, grabbed the tube and completely forgot my new plan and squeezed THE NICE NEW TUBE right in the middle.

As I sat and looked at what I had done, I started to think about habits, routines and just how hard they are to adjust or break them.

I read somewhere that it takes 21 days to change a habit. I can say, in my opinion, it can be even longer. Looking at my new crushed tube of toothpaste makes me think this because after all didn’t I JUST put it there and resolve to change my bad toothpaste crushing ways?

I tell that whole story to you because it makes me think about habits and my daughter, Elizabeth.

Elizabeth, for those who don’t know, has global dyspraxia and sensory processing disorder (SPD). She has worked so hard in the life each day because her disorders affect each day and all she does. Her global dyspraxia is a motor planning disorder that makes it hard work to learn a new skill and sometimes complete a skill that is already known. It also makes it so easy to form habits but so very, very difficult to change them.

So the one thing we have learned is to make sure that the information on how to do something gets in and processed correctly the first time because once the habit is formed…well…good luck to all as we attempt to change them.

So if it 21 days for those who are neurotypical, I would be hard pressed to say how many days it is for Elizabeth and others who have special needs.

This is for habits. But what about just some slight changes that we all adjust to after a few days. Like a new place that you decided to put your purse or say a reorganized closet that leaves you headed to the place you USED to get your socks from for, say a day or two, until you remember you moved them to the OTHER drawer. Then you remember and don’t go to the old place.

But for our children, those little changes can still be challenging. I share this because sometimes I forget that and forget to take some time to go over them with Elizabeth to make sure they get in right the first time. Remember that whole habit thing?

Well guess who didn’t? Yep this girl right here.

I watched a Youtube video on how to clean and organize your pantry. Well I did. And since I love to organize things ( Like REALLY love to organize!) This spread to every cabinet, closet and nook in our home.

It was fun and everything looks so nice ( for a while)

But then I noticed that the plastic containers are laying on top of the pans.

Why because I moved the container cabinet.

And only quickly showed her the great new clean kitchen areas.

Not really working with her to process the changes.

So day 2- plastic on pans again

Same with day 3, 4 and 5 and this is after I showed her.

HABITS!

Made and hard to unmake for Elizabeth.

So now I told her to put the plastic on the counter and we would put them away together.

This is to help her process it better.

Oh and for the record the plastic was not the only thing that was put in its old place.

So I think the take away from this story is that the little things can be big things for our kids and that remembering that ( this is to me too!) as well as what we need to do to help them adjust is the best way for success.

Will I straighten and clean again? That is big YES! But when it has a lot of change in it, I will remember what Elizabeth needs.

Not a bad thing to remember as life changes in both little and big ways.

I wish everyone a peaceful week.

Michele Gianetti author of Elizabeth Believes In Herself

%d bloggers like this: