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Epilepsy Awareness Month - Special Needs Essentials

As a voice in the special needs community, we understand that living with epilepsy is difficult. People with epilepsy deal with multiple challenges, stress, and physical and emotional pain. Thankfully, awareness and education are great ways to shed light on this condition and work towards progressive solutions. That’s why celebrating November Epilepsy Awareness Month (NEAM) is so important.

Also known as a seizure disorder, epilepsy is a neurological condition that affects the nervous system. It is usually diagnosed after a person has had at least two seizures that were not caused by some known medical condition.

Seizures seen in epilepsy are caused by disturbances in the electrical activity of the brain. The seizures in epilepsy may be related to a brain injury or genetics, but often the cause is unknown. Epilepsy is more common than you may think. Check out these surprising numbers to get the details.

  • 65 Million: Number of people around the world who have epilepsy
  • Over 2 Million: Number of people in the United States who have epilepsy
  • 1 IN 26 people in the United States will develop epilepsy at some point in their lifetime
  • Between 4 and 10 out of 1,000: Number of people on earth who live with active seizures at any one time
  • 150,000: Number of new cases of epilepsy in the United States each year
  • ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them
  • 6 OUT OF 10: Number of people with epilepsy where the cause is unknown

DareTo Defy the Odds - Rick Harrison

The National Epilepsy Foundation is a leading resource for people with epilepsy to learn their treatment and therapy options as they strive to become seizure-free. Last year, the National Epilepsy Foundation launched a new year-long education and awareness campaign called #DareTo. The campaign focuses on breaking down the barriers that can prevent people with epilepsy from reaching their fullest potential. They challenged the general public to post their dares over social media to spread awareness and spark inspiration.

“My epilepsy taught me to be a fighter,” said Rick Harrison, a spokesperson for the National Epilepsy Foundation and star of the hit TV program Pawn Stars. “ When I said I wanted to make a TV series out of my pawn shop, people thought I was nuts. But I dared to defy the odds, and Pawn Stars was born. If you have epilepsy, dare to live to your fullest potential. The Epilepsy Foundation will help you dare.”

The Epilepsy Foundation is an unwavering ally in raising awareness, providing support, and funding research to bring new treatments and therapies to market in a time frame that matters for people with seizures. People living with epilepsy, their families and their caregivers are served by their network of more than 40 Epilepsy Foundation affiliates around the country.

Local Foundation affiliates provide information and referral assistance; maintain individual and family support services; serve as advocates for the rights of those with epilepsy; and offer community-based education to employers, emergency first-responders, school nurses, and other allied health professionals. Find your local Epilepsy Foundation here.

How to you #dare to make a difference? Drop by our Facebook page and share your stories.

As Down Syndrome Awareness Month draws to a close, we wanted to highlight a few people born with Down Syndrome who are changing the conversation about how we think about this genetic condition. Extraordinary people like professional model Madeline Stuart and MMA fighter Garrett Holeve urge everyone to revisit how we define beauty and strength.

Madeline Stuart - Special Needs Essentials

Madeline Stuart: The New Beautiful Face in Fashion

Globally-recognized model Madeline Stuart turned heads and made headlines when she strutted down the runway during New York Fashion Week last month. Hosted by fashion brand FTL Moda, Stuart wore fitted, feminine haute couture and finished the show to a standing ovation. Earlier this year, actor Jamie Brewer from the hit tv series American Horror Story became the first person with Down Syndrome to model in a fashion show.

“This is about creating inclusions, stopping discrimination and breaking down those walls of confinement,” said Stuart via Facebook. “Modeling is just the vehicle that is letting us do it. We want everyone to be loved. After all, that is all that truly matters.”

Madeline has documented her NYFW journey via social media. Since her debut as a model a year ago, Madeline has amassed nearly 80,000 Instagram followers, more than 3,300 Twitter fans and 471,911 Facebook followers. In a series of candid photos and tweets, the inspirational model shared the moments that helped shape the future of the fashion industry.

Damian Graybelle, the president of EverMaya, released this statement when the lifestyle brand announced that Madeline had been named as their new spokesmodel. “Let me be clear here – Madeline Stuart is not a ‘beautiful young woman with Down Syndrome.’ Rather, she is beautiful – full stop.”

Garrett Holeve - Special Needs Essentials

Garrett Holeve: Fierce Fighter For Equality

Professional MMA fighter Garrett Holeve is breaking down preconceived notions of people with Down Syndrome in a literal way. Holeve, known professionally as G Money, is fierce both in and out of the hexagonal cage. He has trained as a MMA fighter for five years and wants a chance to compete. As it turns out, Holeve’s biggest battle hasn’t been in the ring. It’s with the people who want to prevent him from participating in professionally-sanctioned fights.

Last August, minutes before the opening bell, the boxing commission ordered the cancellation of a bout between Holeve and David Steffan, a Special Olympian with cerebral palsy. Armed with the full support of National Down Syndrome Society, Holeve has partitioned the Florida authorities for his right to compete in MMA.

“Garret has the same rights as the rest of us. It doesn’t matter that he has Down Syndrome. If he’s a fighter, then he’s a fighter,” said Mark Priceman from the National Down Syndrome Society.

While he waits for the verdict, Holeve is connecting to his beloved sport in other ways. Recently, he founded Garrett’s Fight Foundation which advocates for competitive opportunities for adaptive athletes.

Garrett’s Fight Foundation strives to turn disabilities into abilities by making the necessary modifications to training and finding ways to conquer one’s limitations. The foundation promotes the integration of individuals with various disabilities into athletics by providing individualized coaching and adaptive training. 

October is Down Syndrome Awareness Month, a chance to spread awareness. During the month of October, we celebrate people with Down syndrome and make people aware of their tremendous abilities and accomplishments.

Want to share an inspirational story with us? Drop by our Facebook page and say hello!