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“Let’s see, we can do math on Monday….mostly your budget and then on Tuesday we can practice writing checks and typing.”

“What do you think Elizabeth? How about art time on Friday and then we can have your singing therapy on Wednesday.”

Those areactual conversations I have had with Elizabeth. I think they were helpful in planning her weeks and for the most part she was happy with the plans we made together each Sunday for the week ahead.

With her special needs of global dyspraxia and sensory processing disorder (SPD), she finds open time and no schedule to be stressful and anxiety producing. (Her words, not mine.)

So it is with that in mind, we work together to plan the schedule for the week. Ok, so maybe the plan is made together but the content offerings are all me. You see I visualize Elizabeth’s needs like these little pots on the stove all simmering around. And every so often they need stirred.

Every so often they need attention to stay current because with her dyspraxia, any skill needs practiced to stay current. If not, for her, the skill gets rusty and is harder for her to do. I suppose it is like that for all of us but there is an added twist for her. Because once a skill gets rusty, she can get frustrated trying to do it and then it leads to a bit of a stressful moment as she feels bad she can’t, then feels mad and then feels bad about herself.

So to help her in this thing called life and especially with the pandemic, those pots got stirred..

A lot.

Which was good and great and all that.

Until just recently, I got a little bit of a wake up call and it came right after she had a telehealth with our beloved therapist, Mary.

I was told that Elizabeth started off the conversation with her by getting angry and telling Mary “I am not going to college this fall and I am sad and mad.”

Ok, I thought great start, great feelings.

Then Mary told me that is was when she asked Elizabeth what she wanted to learn or work on, that she got such great thoughts….

Thoughts I didn’t know were there.

Elizabeth told Mary she wanted to work on her handwriting ” I hate how it looks.”

and read better. ” I don’t like to struggle”

and type better. “I want to use 2 hands more.”

and do yoga. “It makes me relaxed.”

and more art. ” I love doing art, and I am proud of myself for it.”

I told Elizabeth I loved her words and thoughts and that we can try to put them into plans for August. Her plans were not in the pots I was stirring, maybe parts of them but I made the mental plan to take all MY pots off the stove and replace them with HER pots.

Her plans.

From her thoughts and feelings.

I have known from the days when she was little that although she was non verbal, crying and trapped in her disorders, she was in there trying to communicate.

Now she does, a lot.

And I am proud of her.

It will be fun to turn the focus to her goals!

Always believe in your child and know that so much is inside of them.

I wish everyone a safe and peaceful week.

Please wear a mask. I do, for my mom and other’s who could get very ill

Michele Gianetti

Hi to everyone this week….and what a week it has been!! I know for me, my anxiety has gone up a notch or two related to the pandemic and how it is going to affect our schools for the year.

The thing is, Elizabeth, my daughter with special needs, will not be affected by the plans for our local school system. She was affected by her college programs plans and as a direct result will not be going to her college program the semester. More on that in another blog!

But our neurotypical son, Michael will be affected… So we am waiting for the board meeting that is scheduled for tonight, to let our community in on what they see as feasible plans for re-opening the schools in late August.

The problem is that any plans made now, based on current virus data, can and probably will need adjusted as the data dictates. Another problem for us in Ohio, is that our county is in the”orange” zone which means we are one step away from red and that is when cases in our county are soaring…not good and so uncertain.

So even with all the uncertainty, I have to say that once your child’s school have a plan even if it is a little bitty plan. Now might be a good time to start writing down how your special need child has been doing through the summer related to their emotions, moods and things like that. I know there have been studies done that confirm the increase in anxiety and depression related to our current lives, so I know our special needs children, would be inclined to have more emotional needs as well.

So write down how they are acting, how they are eating or not, sleep changes, regression, changes to activity levels and more or less concerning behaviors. These are things that you should share with your child’s teacher this way the year can begin with a good understanding of where your child is. I just read an article about how to draw together the special needs team for your child. The team includes, parents or caregivers, educators, therapists and school administrators.

So by writing down all things you are helping the school to understand just where your child is as the year starts. This helps in bringing everyone to the same starting point.

I can tell you Elizabeth sure has emotional swings from all this! There are days when she tells me about her feelings pretty well and other days, she is stomping around the house while saying things like “I hate the virus, and I know I shouldn’t yell but I AM MAD!” this is all said while yelling. Her sensory issues arise a bit more now as well ( related to her sensory processing disorder/ SPD)

The fact is this whole emotional piece and concern for our children’s mental health is one big reason why so many people want to see their child back in school. I cannot begin to open up that can of worms here but suffice it to say, that debate will go on and on……

So as that debate rages, you can do your part to help your special needs child and their team whether your year is in person, blended or virtual.

I hope some of these thoughts help you as you see the school year coming at us all!

Please be safe and wear a mask. I do!, for my mom and others who could get very ill

Michele Gianetti