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10-9-8-7-6-5-4-3-2-1….Happy New Year!  And with the change of the calendar, so comes the automatic lists of New Year’s Resolutions.
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It seems everyone makes them.  The young, the old, those who want to fine tune their lives and those who want to almost completely revamp everything.  The funny thing is that for most, those resolutions are forgotten or broken by mid-to- late January.

I have never been a real resolution kind of person, even before Elizabeth was born.  I guess my logic was always why wait until the start of the year to make changes or adjustments?

Why not try to make those changes on say, a random Friday in June.  In other words, we don’t need to mark positive adjustments as things we do ONLY when the ball has dropped and the calendar has flipped.

It is funny that I was not this kind of person even before Elizabeth

When you have a child like Elizabeth, who has special needs, you find your life changed forever.  The clear cut outline of developmental milestones and “baby’s firsts” are replaced by the ever changing needs of your child’s special needs.  No longer do you look at the charts and know what should come next.  You, instead, look at your child and wonder “what should we DO next?”

We are some 19 years into our journey with Elizabeth and as such, we have honed the skills of both assessment and adjustment.

We have become veritable professionals at keeping our eyes on the happenings of today and yet, still be able to plan for the next step.

We have been at this for so long, that I cannot imagine doing things differently for Elizabeth.  I must admit, I often wonder how it would be to look at a new school year as simply the opportunity to get some really cool new school supplies ( I ALWAYS loved new school supplies….a new school year? not so much… but the supplies? YES)

New clothes and starting fresh, instead of the checklist that we all do, which is

-talking to teachers about our child

-hoping they get it

-hoping they are listening

-sharing information with our therapist  

-marking our calendars for the ever looming IEP meeting.

But this is the reality we all have to help our special needs children.  And truly, we would do anything for these special children!

But back to the whole resolution thing, we have to adjust as needed, fix things, arrange things and make changes when we need to.  Therefore, aren’t we in a way doing the same thing as others do on January 1st?  We cannot afford the luxury of waiting for the crystal ball to drop to make positive changes in either how we see things, do things or function.

We are required to do them when the time is now.

So, yes, I get it,

-We are not planning a new fitness routine for our child with the hopes that they drop those last, pesky five pounds, but we are planning sensory diets that change often.

-We are not vowing to put our child on a diet, but we do have to keep offering new foods to those picky eaters or to those on gluten-free diets.  

-We aren’t promising to “think positively at each moment and breath through the stress” But we do have to keep talking ourselves through many tough and heart rate raising moments.

So for the moment, realize all you do as parents and caregivers to these wonderful amazing children.

And allow yourself the luxury of not officially making resolutions because in reality…you already do them…and unlike those who try and let them go in mid-January…you keep them going each and every day.

I wish you a calm start to a new year.

– Michele Gianetti
www.michelegianetti.com

It is just a notebook, spiral bound to be exact.

But in it you will find my memories of my life with my children and husband.

I keep one for every child…since the day they were born.

It all depends on which notebook you grab as to where you will join in on our lives.

What I mean is, there are at least three that I have for each child.  The first one for each begins with “ I cannot believe that she is here!” Or the case of Michael insert the pronoun “he”.   And the notebooks go on from there.  I have the first words said, first steps, first haircuts, well you get the idea.  But the bottom line is that in each book are memories.

Memories.

-We all want to make them good ones.  

-We all want to remember those great ones.

-We want to share them with others.

I chose to keep mine in these notebooks.  Every so often I will reread certain parts because unlike a scrapbook, mine is like a journal.  So it tells a story.

Reading Emily’s is fun because she was the first born and we were literally clueless as to what to expect.  And it is fun to read how we found our way.

Reading Michael’s is fun because he is the last child and a boy.  And I say this because so many of the journals involve him crushing lego buildings or smashing crayons instead of coloring quietly like his sisters used to do.  

But reading Elizabeth’s takes me on a walk down memory lane that can be a bit tough.  Looking back to where we started can still scare me.  Putting the current me into my old self, and I find I am scared.  Scared of not knowing what she has, how to help her or even how to get through the day.  But reading further and I start to see the successes come.

The words begin to be said and she is beginning to show the world who she is.

After I am done, I usually take a good look at where we are and give thanks.

I take another minute to really think of all she has accomplished.

Some people I know are afraid to look back at their memories.  They tell me it is too emotional, “it is too much for me to think about those things”.  I tell them that I do understand their feelings, but that for me and those who have a special needs child, sometimes looking back helps you realize just how far you have come.

…Sometimes looking back lets you see just how much farther back those hard times have become.

-Michele Gianetti
www.michelegianetti.com/