Archives for category: Therapy

10-9-8-7-6-5-4-3-2-1….Happy New Year!  And with the change of the calendar, so comes the automatic lists of New Year’s Resolutions.
yzdyjgsgw68-alejandro-scaff.jpg

It seems everyone makes them.  The young, the old, those who want to fine tune their lives and those who want to almost completely revamp everything.  The funny thing is that for most, those resolutions are forgotten or broken by mid-to- late January.

I have never been a real resolution kind of person, even before Elizabeth was born.  I guess my logic was always why wait until the start of the year to make changes or adjustments?

Why not try to make those changes on say, a random Friday in June.  In other words, we don’t need to mark positive adjustments as things we do ONLY when the ball has dropped and the calendar has flipped.

It is funny that I was not this kind of person even before Elizabeth

When you have a child like Elizabeth, who has special needs, you find your life changed forever.  The clear cut outline of developmental milestones and “baby’s firsts” are replaced by the ever changing needs of your child’s special needs.  No longer do you look at the charts and know what should come next.  You, instead, look at your child and wonder “what should we DO next?”

We are some 19 years into our journey with Elizabeth and as such, we have honed the skills of both assessment and adjustment.

We have become veritable professionals at keeping our eyes on the happenings of today and yet, still be able to plan for the next step.

We have been at this for so long, that I cannot imagine doing things differently for Elizabeth.  I must admit, I often wonder how it would be to look at a new school year as simply the opportunity to get some really cool new school supplies ( I ALWAYS loved new school supplies….a new school year? not so much… but the supplies? YES)

New clothes and starting fresh, instead of the checklist that we all do, which is

-talking to teachers about our child

-hoping they get it

-hoping they are listening

-sharing information with our therapist  

-marking our calendars for the ever looming IEP meeting.

But this is the reality we all have to help our special needs children.  And truly, we would do anything for these special children!

But back to the whole resolution thing, we have to adjust as needed, fix things, arrange things and make changes when we need to.  Therefore, aren’t we in a way doing the same thing as others do on January 1st?  We cannot afford the luxury of waiting for the crystal ball to drop to make positive changes in either how we see things, do things or function.

We are required to do them when the time is now.

So, yes, I get it,

-We are not planning a new fitness routine for our child with the hopes that they drop those last, pesky five pounds, but we are planning sensory diets that change often.

-We are not vowing to put our child on a diet, but we do have to keep offering new foods to those picky eaters or to those on gluten-free diets.  

-We aren’t promising to “think positively at each moment and breath through the stress” But we do have to keep talking ourselves through many tough and heart rate raising moments.

So for the moment, realize all you do as parents and caregivers to these wonderful amazing children.

And allow yourself the luxury of not officially making resolutions because in reality…you already do them…and unlike those who try and let them go in mid-January…you keep them going each and every day.

I wish you a calm start to a new year.

– Michele Gianetti
www.michelegianetti.com

Hi, my name is Michele Gianetti and I am happy to be the blog writer for Special Needs Essentials.  

I thought I would tell you a little bit about myself.  I am currently 50 years old and I have three amazing children.  Our middle child has special needs.

Prior to having children, I graduated from YSU with a bachelor’s degree in nursing.  I worked mostly in community health situations at the health department and then as a school nurse for five years.  

Our middle child was born in 1997. Elizabeth.   It was at this point that our world changed dramatically and we began my journey with a special needs child. Specifically Sensory issues and Dyspraxia.  I learned so much in my early years with Elizabeth.   Through the years she has made wonderful, amazing gains in her life.  She has also given us so many gifts along the way.

I wanted to share her story…our story to help others. So I wrote my first book.  In the book I tell about some heartfelt stories, share the therapies we have tried, our successes and ouribelieveinyou
failures.  All to let others know they are not alone on this journey.

Elizabeth told me one day, probably a year before I started writing my book,  that people don’t understand me, mom.  I started thinking that this book would be my tribute to her.  To let the world know all she can do and all she has accomplished.  And through the book, I told her, Now Elizabeth, everyone will understand you.

I also wanted to let parents and caregivers know that you can make a difference in your child’s life.

I am excited to share these blogs with you.  My hope is that my years of life with Elizabeth and the experiences we have had will help others on their own journeys.

I hope to write blogs that are honest, helpful and hopeful. Blogs that share thoughts, ideas and support.  Because even though we are all on our own special journeys, our goals are the same.

Michele Gianetti

www.michelegianetti.com

“I Believe In You: A Mother and Daughter’s Special Journey”