Archives for category: Daily Living

We have all seen it, in your child or in other children.  You know the ones who are constantly chewing on things.  Be it the tops of their pencils, their shirt collars, the cuffs of their shirts, water bottle lids, water bottle tops just to name a few of the obvious.

If you are directly related to one of these “chewers”, How many times have you asked them not to chew their shirts, or pencils?  If you are like me, then probable too many times to count.  And then you turn around and see them chewing again.

The need to chew is REAL.

The need to chew is not a choice they have. They are not trying to destroy things. They just have an overwhelming need to chew to gain that sensation.

Offering an alternative to shirt cuffs and water bottles is the best way to start.  

There are two alternatives that I wanted to share with you.  

One is called Chewlery.  Please look it up on our site.  They are great. Because they are necklaces or bracelets that come in some nice colors so getting children to wear them would be easy. They offer the child the chance to chew on something when they need to.  And the chewlery can take the chewing.  So you do not have to worry about them breaking and when they are not being used for the above reason, the child can use it as a quiet fidget.  I know how thankful I am for the quiet part as many teachers do not mind fidgets just “nothing that clicks, Mrs. Gianetti!”.

Another choice, and please look this one up as it comes in so many colors and even a heart shape! It is the Chewigem and this one I think would go over well with both boys and girls.

The one I am talking about is two inch, disc, on a necklace.  I

t has a soft surface, so it makes a nice fidget as well. But it is TOUGH and can take the best of what a chewer can do to it.  The special quality is it can be tucked into the child’s shirt and taken out as needed in class.  No hunting or rummaging for it.  All the world will see is the black necklace.  But you and your child will know that this chewy alternative is there when needed.

Providing this option helps because the child can manage the need to chew by having an object that is made for the job as well as more appropriate.  And that is the thing I have learned over the years with Elizabeth.  That the items used, the words said, and the options given need to be tailored to the age of the child and thus “appropriate”.

On a bit of a serious side, in my opinion, sharing this need to chew with your speech therapist or OT can be a good thing.  Because they may be able to give you some ideas of things either they or you can do to actually help the child actually decrease the need to chew.  So, again, my opinion, but please share with your professionals but while you wait to take to them, offer the appropriate alternative.

These items are just that, appropriate alternatives for real sensory needs.

Wishing everyone a peaceful week.

Michele

 

We’re happy to introduce a new gust blogger to the Special Needs Essentials community,  Jenn from Positive Parenting Specialized. We are glad to have her unique perspective on our blog!

Hi there, I’m Jenn, a single mom to a seventeen year old with Global Depression, a fifteen year old with Asperger’s Syndrome (and a hand full of co-morbid diagnosis), a 10 year old with autism, Type 1 Diabetes, and Generalized Anxiety Disorder, and a 7 year old fireball with Disruptive Behavior Disorder, Sensory Processing Disorder, Learning Challenges, and Anxiety Disorder. I am in my forties and have started blogging to try to support the kids and myself. I love being a work from home mom, praying often that it stays this way.

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Life with four children who all have unique challenges might be surprising. Maybe some of these points are “No Brainers.” See for yourself!

 

Here are Five Things You Might Not Know about Having Multiple Children with Special Needs:

1. We have fun!

Jumping on the trampoline, having pillow fights, going sledding, playing in the

now, etc. All these activities have brought us tons of enjoyment. So when I say I have multiple kids with special needs, please don’t think of us crying in a corner (although, that has happened). I love my kids. I try to support them, cheering them on at every corner.

Other activities that I love to watch the kids do is play in their body socks. They often pack237 one body sock full of pillows, then all three younger children pile in together. Inevitably, one of them gets upset. It is so fun, while it lasts.

Another fun go to activity we do, is we take a “Sensory Tunnel,” and pull the kids around on a hard surface while they lay on it. They love this! I love hearing the squeals of delight.

2. Diets Can Be Hard

I am a short order cook at every single meal! Even with pizza nights, there just can’t be one pizza. Nooooooo. One kid can’t stand too much spaghetti sauce (it makes him dry heave), another kid can’t have gluten, etc. So, I always end up making a few dishes, much to our Behavior Consultant’s Chagrin.

The adage, the child will eat when they are hungry does not match with autism. At some point my kids have gotten down to just GoGurts as a diet. So, if I find foods they will tolerate, I am happy to have them eat. Sure, life might be more complicated, but I sleep better knowing they are getting more nutrition than GoGurts provide.

3. The Kids Feed Off of Each Other.

This is both bad and good. The bad is that when one melts down or is in a funk, they all tend to go down that path (like babies in the newborn nursery atthe hospital, when one cries, they all cry).

The good side is that when one needs help, they all tend to try to problem solve. Sometimes, the problem solving makes no sense or is completely out of our means, but they try. So I say this to convey, “Kids with special needs do have empathy. It just might look different than what we envision.”

My kids feed into each other, however, they do not copy each other. I wish they did. Then, they might be more compliant. They feed off of each other’s moods, but not their actions.

4. They All Are Different

Three of my kids have been on the Autism Spectrum. Even though they have shared a diagnosis, they couldn’t be more different. My fifteen year old is very rule bound (thank God for him!).However, my younger two can be defiant, liking to color outside of the lines, if you know what I mean. One loves to be naked. All three are frustrated very easily. None of them developed according to the normal milestones.

Even though all three have been on the Autism Spectrum and communicating is difficult, you couldn’t believe how diversely they grate each other’s nerves. They know how to push each other’s buttons.

This is part of a vast puzzle: their repetitive behaviors irritate each other. One paces, another can’t stand it and keeps ordering them to sit down. Another makes constant strange noises, the others beg him to stop. And yet the third, will constantly snap, butt bounce, and body rock. The others will beg me to make it stop.

This sounds like it would be oh so funny, but I assure it is NOT. Be in my house for more than an hour, I bet you would want out quickly, especially right around bed time. Riding in our van can be quite the arduous journey.

5. I Love My Kids Always and Forever No Matter What.

Just like typical kids, I am proud of my Fantastic Four. I know there is nothing they can’t do. It is just inspiring them to do their best, pulling out their unique gifts and talents. The talents come to the surface eventually. It takes a great deal of time. We celebrate everything, especially progress, no matter how small or how long it takes to happen.

I feel special needs kids aren’t THAT different from typical ones. They all love to play, love to have fun. For special needs kids, being able to have fun may be more difficult.

But regardless of any circumstance, I am proud to be their mom no matter what. In the moment, as I am smacked by one of them, I may not feel that way. None the less, in my heart of hearts, I am forever theirs, and they are forever mine.

I am always proud of every step forward and we manage through the steps back. All in all, we are family. We stick together, helping each other through it all.
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