Archives for posts with tag: Parents

We have all seen it, in your child or in other children.  You know the ones who are constantly chewing on things.  Be it the tops of their pencils, their shirt collars, the cuffs of their shirts, water bottle lids, water bottle tops just to name a few of the obvious.

If you are directly related to one of these “chewers”, How many times have you asked them not to chew their shirts, or pencils?  If you are like me, then probable too many times to count.  And then you turn around and see them chewing again.

The need to chew is REAL.

The need to chew is not a choice they have. They are not trying to destroy things. They just have an overwhelming need to chew to gain that sensation.

Offering an alternative to shirt cuffs and water bottles is the best way to start.  

There are two alternatives that I wanted to share with you.  

One is called Chewlery.  Please look it up on our site.  They are great. Because they are necklaces or bracelets that come in some nice colors so getting children to wear them would be easy. They offer the child the chance to chew on something when they need to.  And the chewlery can take the chewing.  So you do not have to worry about them breaking and when they are not being used for the above reason, the child can use it as a quiet fidget.  I know how thankful I am for the quiet part as many teachers do not mind fidgets just “nothing that clicks, Mrs. Gianetti!”.

Another choice, and please look this one up as it comes in so many colors and even a heart shape! It is the Chewigem and this one I think would go over well with both boys and girls.

The one I am talking about is two inch, disc, on a necklace.  I

t has a soft surface, so it makes a nice fidget as well. But it is TOUGH and can take the best of what a chewer can do to it.  The special quality is it can be tucked into the child’s shirt and taken out as needed in class.  No hunting or rummaging for it.  All the world will see is the black necklace.  But you and your child will know that this chewy alternative is there when needed.

Providing this option helps because the child can manage the need to chew by having an object that is made for the job as well as more appropriate.  And that is the thing I have learned over the years with Elizabeth.  That the items used, the words said, and the options given need to be tailored to the age of the child and thus “appropriate”.

On a bit of a serious side, in my opinion, sharing this need to chew with your speech therapist or OT can be a good thing.  Because they may be able to give you some ideas of things either they or you can do to actually help the child actually decrease the need to chew.  So, again, my opinion, but please share with your professionals but while you wait to take to them, offer the appropriate alternative.

These items are just that, appropriate alternatives for real sensory needs.

Wishing everyone a peaceful week.

Michele

 

Fantastic Traits of a Strong Special Needs Dad

“I will take her for a walk, Mich.”   

Those are the words John said during an especially tough Thanksgiving dinner about 9 years ago.  Michael was still a baby, it was his first Thanksgiving actually.  He was NEVER a fussy little guy, but on that day he was.  I think due in part to a change in his schedule, but whatever the cause, he was not a happy little man.  Elizabeth was struggling to sit and eat at the table.  She did not like the food, and what I brought for her did not work either.  She was not talking very clearly that day or using more that a couple of words per sentence, so it was hard to figure out exactly what was wrong.  So between the usually happy baby who was not, and our beautiful Elizabeth in the throes of some serious sensory issues, I was about a minute away from joining Michael in crying….then came John’s words.

And he did, on a brisk November day (Ohio weather), he did.

While he was gone, we were able to get Michael to stop crying.

When they returned, calm had returned

To the house.

To the table.

To me.

My Support and My love had helped me so very much that day.

The day kind of sticks out in my memory as a big one. We all know holiday gatherings can be stressful for the best of us, let alone what it can do to the normal rhythms and routines of those with special needs.

That day was an example, but there have been  an infinite amount of other times, when John read the situation and knew how to help support me, as we helped Elizabeth.
Our teamwork was pretty clear from the start.

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John loved being a Dad from the start. I was happier than anything to be home with our children.  I loved every minute but was so happy when John came home.  He would be tired from work, but fresh for the kids.  He immediately lit up to see us, and he started playing.  Chasing, hugging, laughing, loving and “being there” That was and still is how he works.

Being the Dad of a child with special needs is not easy, at least from my point of view. There is a huge learning curve, in my opinion. Learning how to have that certain spark of life – a connection, with those with special needs.

I think it was really hard on John.  He would come home, reach out to hug Emily and Elizabeth, and only Emily could hug him. Or he would home on the weekend and he wanted to play with “his girls” and Elizabeth would hide behind a chair because it was too much for her.  

In the early years with Elizabeth, there was not a guarantee as to what John would be walking into at the end of the day.  There was no guarantee that I would not be beside myself by the time John came home, or that Elizabeth would not be in the middle of a meltdown.   

Then there were  all the hours we spent talking about Elizabeth and her days, her therapies, her successes.

And all the hours he talked to me about me.  About how I was handling things.  

And the hours we had talked when our opinions differed greatly about the next step for Elizabeth.  Like  why I was sure that this therapy would be a good one, or why I just knew she needed to go to this camp.  

And all the hours of hugs and support he gave as I would cry because this was the time I was sure she would talk and she didn’t.   

John was and is all those things to this day.

But for Elizabeth

-He was the one to offer her calm.  I pushed her each day, John allowed her to be.

-He offered her a quiet space.  I took her to busy therapies and schools, John took her to the swings.

-John made her laugh.  I loved he made her forget her tears that day.’

– He saw the fun child and enjoyed her.

-And he loved her, each and everyday. Elizabeth knew it then and she knows it now.

If anybody were to ask me what I felt was the biggest gift from a special needs Dad, I would have to say the last one.  

We all need to feel love and acceptance.  It is just human nature.  But to give that gift to a child who is working so hard for the simplest things is precious and priceless.

So to those Dads who get up and hug their children, know the gift you are giving              

And for those who hug their child, who cannot hug them back, know the gift you are giving is received and treasured even more.