Archives for the month of: July, 2020

Hi to everyone this week….and what a week it has been!! I know for me, my anxiety has gone up a notch or two related to the pandemic and how it is going to affect our schools for the year.

The thing is, Elizabeth, my daughter with special needs, will not be affected by the plans for our local school system. She was affected by her college programs plans and as a direct result will not be going to her college program the semester. More on that in another blog!

But our neurotypical son, Michael will be affected… So we am waiting for the board meeting that is scheduled for tonight, to let our community in on what they see as feasible plans for re-opening the schools in late August.

The problem is that any plans made now, based on current virus data, can and probably will need adjusted as the data dictates. Another problem for us in Ohio, is that our county is in the”orange” zone which means we are one step away from red and that is when cases in our county are soaring…not good and so uncertain.

So even with all the uncertainty, I have to say that once your child’s school have a plan even if it is a little bitty plan. Now might be a good time to start writing down how your special need child has been doing through the summer related to their emotions, moods and things like that. I know there have been studies done that confirm the increase in anxiety and depression related to our current lives, so I know our special needs children, would be inclined to have more emotional needs as well.

So write down how they are acting, how they are eating or not, sleep changes, regression, changes to activity levels and more or less concerning behaviors. These are things that you should share with your child’s teacher this way the year can begin with a good understanding of where your child is. I just read an article about how to draw together the special needs team for your child. The team includes, parents or caregivers, educators, therapists and school administrators.

So by writing down all things you are helping the school to understand just where your child is as the year starts. This helps in bringing everyone to the same starting point.

I can tell you Elizabeth sure has emotional swings from all this! There are days when she tells me about her feelings pretty well and other days, she is stomping around the house while saying things like “I hate the virus, and I know I shouldn’t yell but I AM MAD!” this is all said while yelling. Her sensory issues arise a bit more now as well ( related to her sensory processing disorder/ SPD)

The fact is this whole emotional piece and concern for our children’s mental health is one big reason why so many people want to see their child back in school. I cannot begin to open up that can of worms here but suffice it to say, that debate will go on and on……

So as that debate rages, you can do your part to help your special needs child and their team whether your year is in person, blended or virtual.

I hope some of these thoughts help you as you see the school year coming at us all!

Please be safe and wear a mask. I do!, for my mom and others who could get very ill

Michele Gianetti

As I write this, I am sitting in the car outside the dentist’s office.  Michael and Elizabeth are both scheduled for their routine visits. Their first one since the pandemic began.

I apparently scheduled them for the same time, 10:00, good for me, as that means they both go in at the same time, get done at the same time and I don’t have to sit in the car as long (sorry I know it is not all about me, but it is a good thing!).

However, Michael got called in first and that left Elizabeth waiting for “someone to get me”, and we are going on 10 minutes now.  She is all masked up and waiting.

Anxiety in increasing as the time she is waiting, she says she isn’t but her fidgeting is telling me another story.  So is her talking about the next things today, like making sure she can talk about what she can hold onto….

This type of thing is the reality of the struggle that our children faced prior to Covid but face even more now.  We prepare them but the reality is that they will face changes in plans, waiting times that are more than we thought or situations that fall short of what we told them to expect.

The preparation we did was great, she has a mask on, has sanitizer and knows that she has to social distance ( that means in her words “keep your distance”). I even called early in the morning to confirm that they would go in together.

But things happen and life steps in.

This is a small bump in the plan, not a huge crisis, but it illustrates my point that the increased anxiety our special needs children feel upon navigating this new normal is valid…Really valid!

I put on some soundscape music for her and we talked about how she was feeling.  We did some deep breathing and positive affirmations that she likes.  I have to think to offer that having some of these things at the ready might be a good idea along with perhaps a calming sensory item ( see our store for ideas)

 She told me that it is tough waiting and I don’t know what to do when I get in there.

Again, I really can’t tell her what to expect as I only know what I was told (my appointment isn’t until September, so I have no first-hand experience to rely on).  This helps but only a little.  I have learned getting to the event or experience is to lessening anxiety.  Sometimes it’s the only way! But it once again proves my point that each new experience in the new normal most likely will elicit similar feelings of anxiety and uncertainty. 

So best to recognize it and prepare as best as you can.

Thankfully, the dental assistant arrived at our car window to take her in…this is their protocol.

She exited the car, had to fix her mask as it was below her nose, and in she went.

Once experience down….

I hope you are all having a peaceful week and staying safe.

I am wearing a mask for my mom and those who could get really ill.

Michele Gianetti author of:

I Believe in You: A Mother and Daughter’s Special Journey

Emily’s Sister

Elizabeth Believes in Herself: The Special Journey Continues