Archives for posts with tag: SPD

As I talked about in a few previous blogs, we are changing the focus of our time and work for Elizabeth. Due to COVID and her not going to her college program for special needs, it was her words and thoughts that turned into the new plans. How great is that!

Elizabeth is my daughter with special needs, she has global dyspraxia and sensory processing disorder (SPD). She did not talk until 5 years old. So anytime those words flow, even now, we get so excited and proud. So her telling us all that she did about the goals SHE wants was simply wonderful.

As I said last week, I learned a few things about implementing her goals and so now we have adjusted a bit, still a work in progress, but it has been a better week than last. Truly it is a day to day sort of thing, isn’t it?

But as I was looking for something for her yesterday, I remembered it was in the basket of her “stuff” in my husband’s office. Now this basket contains different pens, grips, sensory stuff, a slant board for writing and more. Items we used in the not so distant past.

But here is the thing, even though we may have used those things not so far back, they seem to not fit what we are doing now. Which is interesting to me. It is like adaptive items seem to cycle in and out of what is currently used for us.

So now as I look at that basket, I will have to sort through it all and see what we can use now, with Elizabeth’s new goals in mind. And what we will need to store away in another area for another time.

I think as our special needs children grow and change, we need to remember 5 simple rules to follow:

  1. It is so important to revisit their “stuff” and see what is used, what isn’t, what we can store away and what we can perhaps donate.

2. It is important to know that even though what once was an amazing thing in their life, may have served its time…for now.

3. It is a good thing to schedule a time to review their sensory boxes, or “stuff” More isn’t always better…so pick what works and decide what to do with the rest.

4. It is a good thing to have them help you if possible because their input is important and can be a good jumping off point to conversation. I like when Elizabeth tells me what she remembers about using a certain item.

5. It is important to know how fast and often our children are changing and that our best laid plans will always need adjusting. I like to have a plan. Elizabeth taught me that my plan will be changed often. I learned I can do that.

My plans for today include dumping out the basket with Elizabeth near me and taking a bit of a walk down memory lane with her.

Then when we are done, I can look up and rejoin current life and her current needs.

We are all a work in progress.

I wish everyone a peaceful week.

Michele Gianetti author of
“I Believe In You: A Mother and Daughter’s Special Journey”

Just yesterday I posted a video yesterday on my Facebook page which shows Elizabeth jumping rope.

The rope is being twirled for her, and she starts jumping then keeps jumping and starts turning in a circle.

It really is a cool video and truly made my day. For those that do not know, Elizabeth has global dyspraxia and sensory processing disorder ( SPD). This means that the motor planning Elizabeth needed to performed to accomplish this task took a lot of work. Those with dyspraxia, need to have skills broken down into small steps and practiced over and over again.

Elizabeth has practiced and accomplished the jumping part of this skill few years ago. However, it is the jumping and turning that require so much more motor planning, knowing where your body is in space and sequencing of steps to do it. I was proud of her, but the most important thing is that she was proud of herself. She came in after doing it with her friend and therapist and said” Come on out Mom, there is something you have to see.” . When she was done and we were all screaming, she put her hand up for high fives.

I love the pride she feels in herself.

Is this a skill that others have learned earlier in life? Yes

Is it a skill that for others has come easily to them? Yes

The thing is, we celebrated it because it was HER success. We celebrated it because it happened WHEN it happened for her.

NO COMPARISONS MADE.

She accomplished it.

The thing about our special needs children is that what they learn, how the learn and when they learn is THEIR way. And that is ok.

It is not their way as compared to others. It is simply their success.

When the new school year arrives, in whatever form it takes, knowing that no matter what goals you have for your child, try not to compare. If the goals are still the same as last year, do not get discouraged. It is on your child’s pace.

If your child completes a skill or learns a new task or says a bunch of new words…..it is all a success.

I offer this out today because after I posted the video, I started thinking of the journey that has been her life and the times I got down about goals she was doing that others her age had done a long time prior and I wanted to encourage those who are facing a school year filled with so many emotions already to not let discouragement be one of them.

In my opinion, any time is really the right time.

I wish everyone a peaceful week. And please wear a mask! I do for my mom and others who could get really ill.

Michele Gianetti

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