Archives for posts with tag: SPD

As I write this, I am sitting in the car outside the dentist’s office.  Michael and Elizabeth are both scheduled for their routine visits. Their first one since the pandemic began.

I apparently scheduled them for the same time, 10:00, good for me, as that means they both go in at the same time, get done at the same time and I don’t have to sit in the car as long (sorry I know it is not all about me, but it is a good thing!).

However, Michael got called in first and that left Elizabeth waiting for “someone to get me”, and we are going on 10 minutes now.  She is all masked up and waiting.

Anxiety in increasing as the time she is waiting, she says she isn’t but her fidgeting is telling me another story.  So is her talking about the next things today, like making sure she can talk about what she can hold onto….

This type of thing is the reality of the struggle that our children faced prior to Covid but face even more now.  We prepare them but the reality is that they will face changes in plans, waiting times that are more than we thought or situations that fall short of what we told them to expect.

The preparation we did was great, she has a mask on, has sanitizer and knows that she has to social distance ( that means in her words “keep your distance”). I even called early in the morning to confirm that they would go in together.

But things happen and life steps in.

This is a small bump in the plan, not a huge crisis, but it illustrates my point that the increased anxiety our special needs children feel upon navigating this new normal is valid…Really valid!

I put on some soundscape music for her and we talked about how she was feeling.  We did some deep breathing and positive affirmations that she likes.  I have to think to offer that having some of these things at the ready might be a good idea along with perhaps a calming sensory item ( see our store for ideas)

 She told me that it is tough waiting and I don’t know what to do when I get in there.

Again, I really can’t tell her what to expect as I only know what I was told (my appointment isn’t until September, so I have no first-hand experience to rely on).  This helps but only a little.  I have learned getting to the event or experience is to lessening anxiety.  Sometimes it’s the only way! But it once again proves my point that each new experience in the new normal most likely will elicit similar feelings of anxiety and uncertainty. 

So best to recognize it and prepare as best as you can.

Thankfully, the dental assistant arrived at our car window to take her in…this is their protocol.

She exited the car, had to fix her mask as it was below her nose, and in she went.

Once experience down….

I hope you are all having a peaceful week and staying safe.

I am wearing a mask for my mom and those who could get really ill.

Michele Gianetti author of:

I Believe in You: A Mother and Daughter’s Special Journey

Emily’s Sister

Elizabeth Believes in Herself: The Special Journey Continues

So we begin…Elizabeth has re-entered the world a bit more.

Slowly,

The way she told us she needed it to.

Her sensory processing disorder ( SPD) and global dyspraxia make all this re-engagement very challenging and honestly, quite anxiety producing. I told you all about this in the previous blog.

I spent some time thinking about it all and I really thought about how dyspraxia affects a person, how much motor planning they do all day to function in the world. How they have to think and plan actions and sequences for the world they know.

NOW, the world they know or better said, KNEW, is now completely different. This means that they have to relearn it all.

Again.

Step by step

And repeat.

I can completely get how overwhelming that would be.

So we began the process of planning for her first official outing with a friend, one that was not just a walk or workout here. She knew this all before, but it is all changed now.

We talked about the corona-virus and that it is still here and we need to be safe.

She picked out a mask to wear ( pink tie dyed, of course).

She put a small sanitizer in her purse.

She told me why she can’t hug a friend, or shake hands and that she will remember social distancing.

I love that she repeats the phrase but I know that her actually doing that will be contingent on others reminding her, so I can see already the need to remind those with her to remind her (I actually wrote this down to remember in the fall for when and if her college program starts because I know she will need this type of support).

In any event, the concepts of it all are ones she gets. And that is important to grasp the concepts because then you can insert the supports that help them implement them.

So after all the prep work, she was ready to go.

And then she paced around and told me again, she was nervous. If I am being truthful by this time of it all, I was ready to say ” Come on Elizabeth, you know you will be fine” but I stopped myself because I know that I still feel lots of emotions day to day.

Finally her friend drove up.

Got out and with a mask on greeted Elizabeth.

Elizabeth put on her mask with help from me..thank you dyspraxia ( and that reminds me that we need to both work on her learning how to put it on independently as well as remember to write this down for fall as well).

And then out she went…

The world opened up a bit more…safely…..for her on Sunday.

2 hours later, she returned.

Hot, happy and all was well.

The world can be so challenging for our special needs children and now is even more so. So a gently won success is wonderful.

I hope your week is peaceful.

I wear a mask for my mom and others who can get very ill.

Michele Gianetti author of:

I Believe in You: A Mother and Daughter’s Special Journey

Emily’s Sister

Elizabeth Believes in Herself: The Special Journey Continues

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