Archives for category: Education

“Let’s see, we can do math on Monday….mostly your budget and then on Tuesday we can practice writing checks and typing.”

“What do you think Elizabeth? How about art time on Friday and then we can have your singing therapy on Wednesday.”

Those areactual conversations I have had with Elizabeth. I think they were helpful in planning her weeks and for the most part she was happy with the plans we made together each Sunday for the week ahead.

With her special needs of global dyspraxia and sensory processing disorder (SPD), she finds open time and no schedule to be stressful and anxiety producing. (Her words, not mine.)

So it is with that in mind, we work together to plan the schedule for the week. Ok, so maybe the plan is made together but the content offerings are all me. You see I visualize Elizabeth’s needs like these little pots on the stove all simmering around. And every so often they need stirred.

Every so often they need attention to stay current because with her dyspraxia, any skill needs practiced to stay current. If not, for her, the skill gets rusty and is harder for her to do. I suppose it is like that for all of us but there is an added twist for her. Because once a skill gets rusty, she can get frustrated trying to do it and then it leads to a bit of a stressful moment as she feels bad she can’t, then feels mad and then feels bad about herself.

So to help her in this thing called life and especially with the pandemic, those pots got stirred..

A lot.

Which was good and great and all that.

Until just recently, I got a little bit of a wake up call and it came right after she had a telehealth with our beloved therapist, Mary.

I was told that Elizabeth started off the conversation with her by getting angry and telling Mary “I am not going to college this fall and I am sad and mad.”

Ok, I thought great start, great feelings.

Then Mary told me that is was when she asked Elizabeth what she wanted to learn or work on, that she got such great thoughts….

Thoughts I didn’t know were there.

Elizabeth told Mary she wanted to work on her handwriting ” I hate how it looks.”

and read better. ” I don’t like to struggle”

and type better. “I want to use 2 hands more.”

and do yoga. “It makes me relaxed.”

and more art. ” I love doing art, and I am proud of myself for it.”

I told Elizabeth I loved her words and thoughts and that we can try to put them into plans for August. Her plans were not in the pots I was stirring, maybe parts of them but I made the mental plan to take all MY pots off the stove and replace them with HER pots.

Her plans.

From her thoughts and feelings.

I have known from the days when she was little that although she was non verbal, crying and trapped in her disorders, she was in there trying to communicate.

Now she does, a lot.

And I am proud of her.

It will be fun to turn the focus to her goals!

Always believe in your child and know that so much is inside of them.

I wish everyone a safe and peaceful week.

Please wear a mask. I do, for my mom and other’s who could get very ill

Michele Gianetti

As I write this, I am sitting in the car outside the dentist’s office.  Michael and Elizabeth are both scheduled for their routine visits. Their first one since the pandemic began.

I apparently scheduled them for the same time, 10:00, good for me, as that means they both go in at the same time, get done at the same time and I don’t have to sit in the car as long (sorry I know it is not all about me, but it is a good thing!).

However, Michael got called in first and that left Elizabeth waiting for “someone to get me”, and we are going on 10 minutes now.  She is all masked up and waiting.

Anxiety in increasing as the time she is waiting, she says she isn’t but her fidgeting is telling me another story.  So is her talking about the next things today, like making sure she can talk about what she can hold onto….

This type of thing is the reality of the struggle that our children faced prior to Covid but face even more now.  We prepare them but the reality is that they will face changes in plans, waiting times that are more than we thought or situations that fall short of what we told them to expect.

The preparation we did was great, she has a mask on, has sanitizer and knows that she has to social distance ( that means in her words “keep your distance”). I even called early in the morning to confirm that they would go in together.

But things happen and life steps in.

This is a small bump in the plan, not a huge crisis, but it illustrates my point that the increased anxiety our special needs children feel upon navigating this new normal is valid…Really valid!

I put on some soundscape music for her and we talked about how she was feeling.  We did some deep breathing and positive affirmations that she likes.  I have to think to offer that having some of these things at the ready might be a good idea along with perhaps a calming sensory item ( see our store for ideas)

 She told me that it is tough waiting and I don’t know what to do when I get in there.

Again, I really can’t tell her what to expect as I only know what I was told (my appointment isn’t until September, so I have no first-hand experience to rely on).  This helps but only a little.  I have learned getting to the event or experience is to lessening anxiety.  Sometimes it’s the only way! But it once again proves my point that each new experience in the new normal most likely will elicit similar feelings of anxiety and uncertainty. 

So best to recognize it and prepare as best as you can.

Thankfully, the dental assistant arrived at our car window to take her in…this is their protocol.

She exited the car, had to fix her mask as it was below her nose, and in she went.

Once experience down….

I hope you are all having a peaceful week and staying safe.

I am wearing a mask for my mom and those who could get really ill.

Michele Gianetti author of:

I Believe in You: A Mother and Daughter’s Special Journey

Emily’s Sister

Elizabeth Believes in Herself: The Special Journey Continues