Archives for posts with tag: mother’s day

I had someone tell me once during a big discussion of life that ” Truth be told, Michele, time goes at the same pace it always did” He meant it goes no faster or slower but I disagree. I understand that time ticks away at the same pace but there are times in your life or moments in your life that make it feel like time flies or crawls along.

The thing said to us all and really BY us all, is that “time really does pass fast” but for those who have children with special needs, it seems to pass so slowly at the same time because maybe we/they are working so hard or maybe it is just a really tough time.

Elizabeth is my middle child and she has special needs. She is 23 now. She was diagnosed at 2.5 years old with Sensory Processing Disorder (SPD) and dyspraxia. Her early years were really tough ones with her crying almost all day and the therapy appointments and on and on……

Those are the times I think felt like they were going so very slowly….Would she ever talk? Will she really walk well? Oh, Look! She said a word? Oh wow! She is trying to walk! It was bit by bit, moment by moment, effort by effort. I feel that is why it all felt in slow motion.

Life with Elizabeth and her needs changed the way we felt time went.

It is like we are working so hard each moment, day, week and year for our special needs child that it is as if an imaginary calendar, is directly behind us just flipping off days as we continue to do all we want/need/must do for our special child and we don’t notice it all. Yet when we look up from our work, we do and we notice it greatly….

So when I look at pictures and see my children when they were little it seems just a moment in time.

It is such a tug at my heart when I see the little bob haircut on Emily, my oldest or the tiny bows in Elizabeth’s hair when she was little (and would allow them IN her hair) or when I see Michael, my youngest in these little shorts. Or when I see them in middle school on track or a swim team picture. Elizabeth for the former, Emily for the latter. And Michael on his first basketball team. How fast it seems to have gone!

Or when I see the graduation pictures of Emily and Elizabeth. Fast again.

Or when I remember Emily went off to school for Kindergarten and Elizabeth and I were together headed to therapy after therapy…..Slow motion here.

Then Emily was suddenly in 5th grade and Elizabeth entered our school system (a bit late) to first grade.

Slow, then fast, then slow……Then Michael arrived and the clock started again. And it too, moved slowly and super fast as well.

I have often talked about the “Gift of Elizabeth” The ways that being in her life have taught us things. Such as slowing down to watch the sunset or dancing to a song is really important even if dinner is cooking, or to really appreciate and celebrate EACH AND EVERY success achieved in life. I am so grateful that because of her gifts, we were able to treasure the good things of life whether the time was moving slow or fast.

I hope all the moms or “moms in the life” of a child with special needs realizes deep in their hearts just how important they are, what gift THEY are. And just how much their love and devotion makes a difference in their child’s life. That is just something I really needed to say.

So with that I wish all the moms out there a Happy Mother’s Day. And weather you are in a place in life where time is moving slowly, I wish you strength or if you are in a place where time is moving fast, I hope you enjoy it all.

I write this blog in honor of my friend Barb Phillips, sorry Barb I had to put your name here. As I write this, she is at the hospital going on day 17 being the biggest champion and advocate for her daughter Lacie.

Lacie has faced the very real possibility of going to heaven these past 17 days and Barb has NOT once left her side. She speaks for Lacie, because Lacie doesn’t have a voice right now. Barb is a beautiful mom.

Lacie, in her 20’s now, was born with many many medical issues and Barb has NEVER, NOT ONCE waivered in her care for Lacie. Driven by, well…LOVE, Barb has seen her through situations, surgeries, and care throughout days and nights that would drop others to their knees. But the love keeps her going. She herself has some health issue but she doesn’t complain. She is truly what a mom is. Lacie is a gift to her but Barb, you are a gift to Lacie as well!

Barb wants Lacie’s life to matter.

Barb, by your fierce love and devotion, you have made sure it does.

Happy Mother’ Day to all

I wish everyone a peaceful week.

Michele Gianetti author of Elizabeth Believes in Herself.

We all enter into the month of May with different feelings.

I enter into it,

Grateful:  to be looking at Summertime

Fatigued: from the work of a school year

Happy:  to see more of my children

Determined:  to make sure Summer activities are in order.

For others, the thoughts of gardens to be planted take over or thoughts of long walks or just being a bit more relaxed.

But there is one special time on the calendar that elicits many emotions just by the name itself.

And it is called Read the rest of this entry »

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