Archives for posts with tag: dyspraxia

I ask the above question because life changes the best laid plans.

For us, we are officially in week two of our fall schedule. I know we could have started ours, (Elizabeth’s and mine) earlier but decided to begin at the same time as Michael, her brother.

So that brings us to week two. And I must say that what Elizabeth and I had planned on paper looks a bit different in real life. Elizabeth is home now due to COVID instead of being in her college program for those with special needs. Part of what really works for her is to have a written schedule for the week and also one for each day. Nothing set in stone, just a gentle flow of what is or should I say, should be expected each day. Her sensory processing disorder ( SPD) can make transitions anxiety producing, so seeing what is scheduled helps with that.

Our schedule was to include work time each day, yoga one morning a week, our walk, cooking on Monday, time to work on her Etsy account each morning and then whatever activity she has in the afternoon, as she has a few virtual therapies.

So, how is it going?

Well…?

I found out that we need to walk first thing in the morning. It takes us about and hour or so to do the 5 miles along with the getting ready and getting home part. So that is a big hunk of time. And if not done then, she either doesn’t feel like it or there isn’t time later. The walk is so calming and quite enjoyable, so we are making it a priority for her.

Then she eats breakfast and starts to relax which is a good thing but also makes transitioning to our Etsy or worktime a big push. And just maybe we haven’t done work this past week…..

I found out that cooking everyone Monday with her is fun as long as Michael doesn’t have basketball practice and I need to take him. If so, then I need to cook earlier in the day and at that time, she is on a virtual class…..so just maybe we need to be more flexible and pick A day, not necessarily Monday.

I learned that I make a very uncreative teacher. If the assignment says type this. I say “Elizabeth, let’s type this” to which she says a whole bunch of things, some positive others not so much. (These assignments come from her tutor.) I learned I need to review the work we need to do ahead of time to present it in manageable chunks.

I learned that putting anything on the schedule past 6pm is basically making the decision NEVER TO DO IT. Yep, I learned that one well. Who knew that that lovely open time of the day was a really bad time for Elizabeth? I thought with her being off, she would be less tired and ready to roll and we could space out the things we want to do. So it is a definite no-go at that time, and trust me, I got the message.

I also learned that working in her room is not ideal, as is working at the den table. It is oddly, the kitchen table that is the unique fit. Not too loud, not too quiet. So again, it is learning where your child will focus best and you will find us at the kitchen table moving forward.

As I said, we are in week two and made a few adjustments from last week and I think it is a bit better than last week, not all the way, just better. I think that by understanding that this whole thing is new to us all, we can allow ourselves the wiggle room to adjust and adjust until things settle in the best way for our child.

I also learned I need to pick up a few supplies for her learning as in I am not sure who took all the pencil grips?! So I will be taking an inventory of what we need. So it you find you need something, maybe take a look at our site to see what fits your needs.

I am writing this at 5:50 in the morning as I love to get up early and workout and get somethings done, I am watching the weather and it is 44 degrees outside, and I am thinking our walk is going to be a cold one today and I also know we will be walking early because I learned it is what works best for the flow of our day.

After all, it is all a learning process for us with our special needs children and they and we are all a work in progress.

I hope everyone has a peaceful week. Please wear a mask! I do for my mom and others who could get really ill

Michele Gianetti

Just yesterday I posted a video yesterday on my Facebook page which shows Elizabeth jumping rope.

The rope is being twirled for her, and she starts jumping then keeps jumping and starts turning in a circle.

It really is a cool video and truly made my day. For those that do not know, Elizabeth has global dyspraxia and sensory processing disorder ( SPD). This means that the motor planning Elizabeth needed to performed to accomplish this task took a lot of work. Those with dyspraxia, need to have skills broken down into small steps and practiced over and over again.

Elizabeth has practiced and accomplished the jumping part of this skill few years ago. However, it is the jumping and turning that require so much more motor planning, knowing where your body is in space and sequencing of steps to do it. I was proud of her, but the most important thing is that she was proud of herself. She came in after doing it with her friend and therapist and said” Come on out Mom, there is something you have to see.” . When she was done and we were all screaming, she put her hand up for high fives.

I love the pride she feels in herself.

Is this a skill that others have learned earlier in life? Yes

Is it a skill that for others has come easily to them? Yes

The thing is, we celebrated it because it was HER success. We celebrated it because it happened WHEN it happened for her.

NO COMPARISONS MADE.

She accomplished it.

The thing about our special needs children is that what they learn, how the learn and when they learn is THEIR way. And that is ok.

It is not their way as compared to others. It is simply their success.

When the new school year arrives, in whatever form it takes, knowing that no matter what goals you have for your child, try not to compare. If the goals are still the same as last year, do not get discouraged. It is on your child’s pace.

If your child completes a skill or learns a new task or says a bunch of new words…..it is all a success.

I offer this out today because after I posted the video, I started thinking of the journey that has been her life and the times I got down about goals she was doing that others her age had done a long time prior and I wanted to encourage those who are facing a school year filled with so many emotions already to not let discouragement be one of them.

In my opinion, any time is really the right time.

I wish everyone a peaceful week. And please wear a mask! I do for my mom and others who could get really ill.

Michele Gianetti