Archives for posts with tag: blogging parents

I was just having a conversation with a new friend who asked me about our experiences with the school system as Elizabeth was growing up.  I told her that it was a struggle to have them truly understand how Elizabeth worked, her true needs and then of course, the ability to adapt and modify as her needs changed and as she matured and grew.  Her special needs of sensory processing disorder ( SPD) and dyspraxia made it very challenging!

I continued to tell her about the need for strong advocacy and how because of it, the school did listen better and we did, for the most part, work as a team.  But the thing I did stress to my friend was the need to remember and make sure others remembered what the ‘I” in IEP really stands for.  I think so much of the time, it is easy to forget this. Read the rest of this entry »

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Once upon a time there was a big, overstuffed basket.  And next to it was a little girl, named Elizabeth.  Elizabeth did not like to see her Mom bring out the basket because when Mom brought it out, Elizabeth knew she would have to work.

Because in the basket, you see, were all the things that Mom was told Elizabeth needed to do and work on.  There was Theraputty in it, coloring books, thick crayons, special scissors as well as things for her mouth work, like whistles or a vibrating elephant.

Mom called  this time with the basket “Elizabeth’s work time”  and it meant that Elizabeth could not do anything else while working, just sitting with mom doing thing after thing. And truthfully, little Elizabeth really hated “work time.” Read the rest of this entry »

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