Archives for posts with tag: Special Needs Mom

Just yesterday I posted a video yesterday on my Facebook page which shows Elizabeth jumping rope.

The rope is being twirled for her, and she starts jumping then keeps jumping and starts turning in a circle.

It really is a cool video and truly made my day. For those that do not know, Elizabeth has global dyspraxia and sensory processing disorder ( SPD). This means that the motor planning Elizabeth needed to performed to accomplish this task took a lot of work. Those with dyspraxia, need to have skills broken down into small steps and practiced over and over again.

Elizabeth has practiced and accomplished the jumping part of this skill few years ago. However, it is the jumping and turning that require so much more motor planning, knowing where your body is in space and sequencing of steps to do it. I was proud of her, but the most important thing is that she was proud of herself. She came in after doing it with her friend and therapist and said” Come on out Mom, there is something you have to see.” . When she was done and we were all screaming, she put her hand up for high fives.

I love the pride she feels in herself.

Is this a skill that others have learned earlier in life? Yes

Is it a skill that for others has come easily to them? Yes

The thing is, we celebrated it because it was HER success. We celebrated it because it happened WHEN it happened for her.

NO COMPARISONS MADE.

She accomplished it.

The thing about our special needs children is that what they learn, how the learn and when they learn is THEIR way. And that is ok.

It is not their way as compared to others. It is simply their success.

When the new school year arrives, in whatever form it takes, knowing that no matter what goals you have for your child, try not to compare. If the goals are still the same as last year, do not get discouraged. It is on your child’s pace.

If your child completes a skill or learns a new task or says a bunch of new words…..it is all a success.

I offer this out today because after I posted the video, I started thinking of the journey that has been her life and the times I got down about goals she was doing that others her age had done a long time prior and I wanted to encourage those who are facing a school year filled with so many emotions already to not let discouragement be one of them.

In my opinion, any time is really the right time.

I wish everyone a peaceful week. And please wear a mask! I do for my mom and others who could get really ill.

Michele Gianetti

Michael was talking to me yesterday and said something that I think really sums up his time off. We were driving to take him to an appointment and I mentioned that his school is now starting in September instead of mid August. Due to, of course, the Coronavirus.

I just finished telling him about it and he said, ” I have another month off but it’s weird Mom, the summer went so fast but so slow at the same time.”

And that my friends is really the truth of this whole thing isn’t it. As much as it seems like a long time we have been at this, sometimes it feels so much shorter.

We have all worked out way through many emotions since late February from panic and anxiety to current day disbelief that many STILL do not follow safety protocols simply because they do not want to. And somewhere in all that we ended a school year with our children facing the computer and interacting with their teacher and friends instead of in person.

Now, we are all facing the start of a new school year that has almost as many uncertainties than last year if not more.

There is one common thing, at least in my opinion, and it is the need to help your child with special needs (and typical children) start the year off as organized and calm as is possible amidst this pandemic.

Here are 4 easy tips to use during this school year:

  1. COMMUNICATE WITH YOUR CHILD ABOUT GOALS FOR THE YEAR

I say this one because I know what MY goals and hopes are for Elizabeth, but I shared in a blog prior, that they were NOT her goals now. Truly, at the age she is she SHOULD have a say in her goals, but in truth, all typical children have a say in their plans or choices ( some have bigger says than others). From the sport they like, to the after school activities ( pre- COVID) so if neurotypical children can have this say, then it serves to logic that our special needs children should get to have the same…to their best ability. It was truly eye opening to hear Elizabeth’s goals and I was grateful to know them and try to help her meet them.

2. HELP THEM PLAN A WORK SPACE

Face it, trying to learn with the blender going, a sibling talking and the T.V. on can be super challenging for some and for other silence is the enemy. It really is all about the child and their needs and ways of learning. So plan out a place that fits their needs best and designate it as their schoolwork spot. Now in COVID, what was a great space may be commandeered by a sibling etc. So maybe take a peek at available spaces that may work and go from there. I know Elizabeth wants to be alone and in a quiet room with me when we work but changes the room depending on her mood.

3. HELP THEM PLAN THEIR SCHOOL DAY

My beautiful typical developing son, Michael showed me just how well a greatly motivated middle schooler could polish off a weeks worth of work to get to freedom early during the quarantine So there’s that option but that one leads to a crammed in day, hurried work and less processing of information. So a few, nice conversations later, Michael was part of planning a schedule for work that did not include the finish line by Monday night.

It helps our children to have a schedule of their days and work to help them prioritize, plan and process their work. And for those with special needs, it helps them plan for the work and transition between challenges.. I know Elizabeth WANTS to know what work she will be doing each day. Even if your child is home with you, a plan helps everyone stay organized and shows where there is time to put in a walk, some fun thing or simple downtime

4.PLAN A TIME TO CHECK IN WITH THEM

Sure they could literally be at your kitchen table all day. Or home from school for hours. But checking in with them means checking in on emotions, how they are coping, their anxiety or concerns. Just because your child, special needs or typical “look” ok doesn’t mean they don’t have something to share or talk about. This is especially so during COVID.

Making time to check in is, in my opinion, critical. Michael and I call it “hanging out for a while” and Elizabeth calls it “chat time” Whatever its term, it is really important.

Time for school is upon us in some form…so a bit of planning can help instill a bit of peace.

I hope everyone has a safe, peaceful week.

Please wear a mask. I do for my mom and others who could get really ill.

Michele Gianetti